Connect with our local chapter:

Our Chapter’s Mission

We are the Huntington's Disease Society of America, Greater New York Chapter. We are a chapter of the Huntington's Disease Society of America, a national, not-for-profit voluntary health agency.

The purpose of our chapter is:
  • To help individuals affected by Huntington's Disease and their families through support and services 
  • To educate both the public and health care professionals about Huntington's Disease
  • To promote and support research directed at discovering a treatment and ultimately a cure for Huntington's Disease. 
While there is still no cure for HD, today there is more hope than ever that we can beat this disease. Until then, our chapter will strive to provide support and sustenance to our HD families, knowing that while research provides hope for the future, we must provide care for our HD community today. We have become an active community, educating ourselves, sharing information, and advocating for ourselves and our loved ones.


Board of Directors

Theresa Spelman,President Michael Varner Christina Tamdjidi
Amanda Polli, Vice President & Social Media Patrick Ahern Pam Brown-Inz
Carol Baird, Treasurer & Team Hope Walk Maggie Kiselick Ronit Gilad
M.C. Kiselick, Secretary Ronald Ahern Emily Rekstis
Charlotte Small Mary Ann Emerick, Advocacy  

Get Involved

If you are interested in volunteering for any of our events or serving on an event committee
please email the chapter by CLICKING HERE.


PO Box 1502
New York, NY 10163
National Office:
Field Manager
Neekia Davis
505 Eighth Avenue, Suite 902
New York, NY 10018
p. (212) 242-1968 ext. 233