Connect with our local chapter:

Who We Are

Welcome to the Huntington's Disease Society of America's (HDSA) Greater New York City Chapter. We are a part of HDSA's New York/New Jersey Region.


Our Mission

To improve the lives of everyone affected by Huntington's disease and their families.

Our Vision

A world free of Huntington's disease.

About HDSA

The Huntington's Disease Society of America (HDSA) is the premier nonprofit organization dedicated to improving the lives of everyone affected by Huntington's disease. From community services and education to advocacy and research, HDSA is the world's leader in providing help for today, hope for tomorrow for people with Huntington's disease and their families. In the battle against Huntington's disease no one fights alone. At HDSA, family is everything.​

HDSA Centers of Excellence

The HDSA Centers of Excellence provide an elite multidisciplinary approach to Huntington's disease care and research. HDSA currently has 50 Centers of Excellence across the United States.

At these world-class facilities, patients benefit from expert neurologists, psychiatrists, therapists, counselors and other professionals who have deep experience working with families affected by HD and who work collaboratively to help families plan the best HD care program throughout the course of the disease.

For the exact address of each HDSA Center of Excellence, click here for our Locate Resources page


Board of Directors

Theresa Spelman, President Michael Varner Phil Kiselick
Amanda Polli, Vice President & Social Media Paula Wasserman Emily Rekstis
Carol Baird, Treasurer & Team Hope Walk Maggie Kiselick Brendan Milnamow
M.C. Kiselick, Secretary Peter DeVore  
Charlotte Small Mary Ann Emerick  


Get Involved

If you are interested in volunteering for any of our events or serving on an event committee
please email the chapter by CLICKING HERE.



PO Box 1502
New York, NY 10163
New York and New Jersey Region Staff Contact:
Kristine Magnifico
P. (212) 242 -1968 x236