Welcome to the Huntington's Disease Society of America's (HDSA) Greater New York City Chapter. We are a part of HDSA's Northeast Region.

Our Mission      |      To improve the lives of everyone affected by Huntington's disease and their families.

 

Our Vision     |      A world free of Huntington's disease.

 

About HDSA

The Huntington's Disease Society of America (HDSA) is the premier nonprofit organization dedicated to improving the lives of everyone affected by Huntington's disease. From community services and education to advocacy and research, HDSA is the world's leader in providing help for today, hope for tomorrow for people with Huntington's disease and their families. In the battle against Huntington's disease no one fights alone. At HDSA, family is everything.​
 

HDSA Centers of Excellence

The HDSA Centers of Excellence provide an elite multidisciplinary approach to Huntington's disease care and research.

At these world-class facilities, patients benefit from expert neurologists, psychiatrists, therapists, counselors and other professionals who have deep experience working with families affected by HD and who work collaboratively to help families plan the best HD care program throughout the course of the disease.

For the exact address of each HDSA Center of Excellence, click here for our Locate Resources page


Board of Directors

 
M.C. Kiselick, President Charlotte Small Phil Kiselick
Maggie Milnamow, Vice President Brendan Milnamow Peter Devore
Daniel Fendler, Treasurer Brandon Pearson Katie Papciak
Theresa Spelman Lizzie Greene Shravanthi Chidambaram
Amanda Polli, Celebration of Hope Chair Michael Varner Elizabeth Greene
Carol Baird, Team Hope Chair Emily Rekstis  

 

Contacts


HDSA GREATER NEW YORK CHAPTER
greaterny@hdsavolunteer.org 
PO Box 1502
New York, NY 10163
 
HDSA Regional Development Officers
Virginia Goolkasian
PO Box 14
Chelmsford, MA 01824
p. (978) 905-5588
vgoolkasian@hdsa.org  

Melinda Jensen
p. (212)-242-1968 ext: 236
e. mjensen@hdsa.org