Welcome to the Huntington's Disease Society of America's (HDSA) Greater New York City Chapter. We are a part of HDSA's Northeast Region. To Contact us about Volunteer/Sponsorship or other needs, email greaterny@hdsavolunteer.org.

Our Mission      |      To improve the lives of everyone affected by Huntington's disease and their families.
Our Vision     |      A world free of Huntington's disease.

About HDSA

The Huntington's Disease Society of America (HDSA) is the premier nonprofit organization dedicated to improving the lives of everyone affected by Huntington's disease. From community services and education to advocacy and research, HDSA is the world's leader in providing help for today, hope for tomorrow for people with Huntington's disease and their families. In the battle against Huntington's disease no one fights alone. At HDSA, family is everything.​

HDSA Centers of Excellence

The HDSA Centers of Excellence provide an elite multidisciplinary approach to Huntington's disease care and research.

At these world-class facilities, patients benefit from expert neurologists, psychiatrists, therapists, counselors and other professionals who have deep experience working with families affected by HD and who work collaboratively to help families plan the best HD care program throughout the course of the disease.

For the exact address of each HDSA Center of Excellence, click here for our Locate Resources page

Board of Directors

M.C. Kiselick, President Theresa Spelman, Board Recruitment Chair Anna Canoni
Amanda Polli, Vice President, Celebration of Hope Chair  Brendan McCann Stephen Fendler
Daniel Fendler, Treasurer Maggie Milnamow Lois Fendler
Carol Baird, Team Hope Chair Emily Rekstis Drew Dluzniewski
Lizzie Greene, Education Day & Social Work Chair Peter Devore Candice Pell
Phil Kiselick, Secretary Michael Varner  


PO Box 1502
New York, NY 10163

HDSA Regional Development Officer
Melinda Jensen
p. (212)-242-1968 ext: 236
e. mjensen@hdsa.org