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Welcome to the Huntington's Disease Society of America's (HDSA) Greater New York City Chapter. We are a part of HDSA's Northeast Region.

Our Mission      |      To improve the lives of everyone affected by Huntington's disease and their families.


Our Vision     |      A world free of Huntington's disease.


About HDSA

The Huntington's Disease Society of America (HDSA) is the premier nonprofit organization dedicated to improving the lives of everyone affected by Huntington's disease. From community services and education to advocacy and research, HDSA is the world's leader in providing help for today, hope for tomorrow for people with Huntington's disease and their families. In the battle against Huntington's disease no one fights alone. At HDSA, family is everything.​

HDSA Centers of Excellence

The HDSA Centers of Excellence provide an elite multidisciplinary approach to Huntington's disease care and research. HDSA currently has 54 Centers of Excellence across the United States.

At these world-class facilities, patients benefit from expert neurologists, psychiatrists, therapists, counselors and other professionals who have deep experience working with families affected by HD and who work collaboratively to help families plan the best HD care program throughout the course of the disease.

For the exact address of each HDSA Center of Excellence, click here for our Locate Resources page

Board of Directors

Theresa Spelman, President Michael Varner Phil Kiselick
Amanda Polli, Vice President & Social Media Paula Wasserman Emily Rekstis
Carol Baird, Treasurer & Team Hope Walk Maggie Kiselick Brendan Milnamow
Charlotte Small, Secretary Peter DeVore Shravanthi Chidambaram
M.C. Kiselick Trish Rollins Elizabeth Greene
Daniel Fendler    

Get Involved

If you are interested in volunteering for any of our events or serving on an event committee
please email the chapter by CLICKING HERE.



PO Box 1502
New York, NY 10163
HDSA Regional Development Officers
Virginia Goolkasian
PO Box 14
Chelmsford, MA 01824
p. (978) 905-5588  

Melinda Jensen
p. (212)-242-1968 ext: 236