Welcome to the Huntington's Disease Society of America's (HDSA) Greater New York City Chapter. We are a part of HDSA's Northeast Region. To Contact us about Volunteer/Sponsorship or other needs, email greaterny@hdsavolunteer.org.
Our Mission | To improve the lives of everyone affected by Huntington's disease and their families.Our Vision | A world free of Huntington's disease.
About HDSA
The Huntington's Disease Society of America (HDSA) is the premier nonprofit organization dedicated to improving the lives of everyone affected by Huntington's disease. From community services and education to advocacy and research, HDSA is the world's leader in providing help for today, hope for tomorrow for people with Huntington's disease and their families. In the battle against Huntington's disease no one fights alone. At HDSA, family is everything.HDSA Centers of Excellence
At these world-class facilities, patients benefit from expert neurologists, psychiatrists, therapists, counselors and other professionals who have deep experience working with families affected by HD and who work collaboratively to help families plan the best HD care program throughout the course of the disease.
For the exact address of each HDSA Center of Excellence, click here for our Locate Resources page
Board of Directors
| M.C. Kiselick, President | Phil Kiselick | Anna Canoni |
| Maggie Milnamow, Vice President | Brendan Milnamow | Stephen Fendler |
| Daniel Fendler, Treasurer | Theresa Spelman | Lois Fendler |
| Carol Baird, Team Hope Chair | Emily Rekstis | Brendan McCann |
| Amanda Polli, Celebration of Hope Chair | Peter Devore | Candice Pell |
| Lizzie Greene, Education Day Chair | Michael Varner | Drew Dluzniewski |
Contacts
HDSA GREATER NEW YORK CHAPTER
greaterny@hdsavolunteer.org
PO Box 1502
New York, NY 10163
HDSA Greater New York Chapter Social Worker
Trenia Powis
p. (212)-242-1968
e. tpowis@hdsa.org
HDSA Regional Development Officer
Melinda Jensen
p. (212)-242-1968 ext: 236
e. mjensen@hdsa.org