• 2024 Amaryllis

    The amaryllis is a symbol of strength and determination for the HD community. Place your orders starting October 18th!

  • JOIN POWER HD

    By generating the most comprehensive patient-driven Huntington’s disease data we can accelerate research and the development of new drugs, devices, or other therapies. YOU HAVE THE POWER.

  • HD SYMPTOMS AND TREATMENT IMPACT SURVEY

    This first-of-its kind survey has been created by the HD community for the HD community. When you take this survey, you will be informing the FDA, NIH and medical product developers how you describe the challenges of living with HD, manage symptoms, and define the value of new treatments.

  • New York City Team Hope Walk 2024

    Donate, register your team, or sign up for a team and join us for our annual Team Hope Walk NYC Event on Saturday, September 21st, 2024.

  • GREATER NY SUPPORT GROUP

    HDSA support groups are free for individuals, their loved ones, and families impacted by Huntington’s disease. Greater NY Chapter Support Group: Second Monday of each Month at 6:30pm