HD SYMPTOMS AND TREATMENT IMPACT SURVEY

This first-of-its kind survey has been created by the HD community for the HD community. When you take this survey, you will be informing the FDA, NIH and medical product developers how you describe the challenges of living with HD, manage symptoms, and define the value of new treatments.

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TAKE ACTION NOW!

You can participate in the HDSA Externally-led Patient Focused Drug Development (EL-PFDD) Meeting for Pre-symptomatic and Early to Mid-Stage Adult Onset of HD, on November 13, 2024.

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JOIN POWER HD

By generating the most comprehensive patient-driven Huntington’s disease data we can accelerate research and the development of new drugs, devices, or other therapies. YOU HAVE THE POWER.

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SAVE THE DATE!

Join us for the 40th Annual HDSA Convention in Indianapolis, Indiana on June 26-28, 2025 This is your unique chance to connect, learn, inspire and get inspired. Our convention is not just an event – it’s a celebration, it’s magic!

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New York City Team Hope Walk 2024

Donate, register your team, or sign up for a team and join us for our annual Team Hope Walk NYC Event on Saturday, September 21st, 2024.

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GREATER NY SUPPORT GROUP

HDSA support groups are free for individuals, their loved ones, and families impacted by Huntington’s disease. Greater NY Chapter Support Group: Second Monday of each Month at 6:30pm

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