• Watch the HDSA EL-PFDD Meeting!

  • GREATER NY SUPPORT GROUP

    HDSA support groups are free for individuals, their loved ones, and families impacted by Huntington’s disease.

  • JOIN POWER HD

    By generating the most comprehensive patient-driven Huntington’s disease data we can accelerate research and the development of new drugs, devices, or other therapies. YOU HAVE THE POWER.

  • HD SYMPTOMS AND TREATMENT IMPACT SURVEY

    This first-of-its kind survey has been created by the HD community for the HD community. When you take this survey, you will be informing the FDA, NIH and medical product developers how you describe the challenges of living with HD, manage symptoms, and define the value of new treatments.