Join HDSA on Rare Disease Day – February 28th!

On February 28th, lets show our strength—together. This year, we’re counting on you to help us raise $15,000 and unlock our matching gift challenge, doubling our impact to $30,000 in support of HDSA programs, research, and family services. We can’t do this without you! DONATE TODAY!

MEET OUR NEW PRESIDENT AND CEO AMY GRAY

We are excited to announce that Amy Gray has joined our organization as the new President and Chief Executive Officer.

Watch the HDSA EL-PFDD Meeting!

Registration is now OPEN!

Join us for the 40th Annual HDSA Convention in Indianapolis, Indiana on June 26-28, 2025 This is your unique chance to connect, learn, inspire and get inspired. Our convention is not just an event – it’s a celebration, it’s magic!

GREATER NY SUPPORT GROUP

HDSA support groups are free for individuals, their loved ones, and families impacted by Huntington’s disease.

JOIN POWER HD

By generating the most comprehensive patient-driven Huntington’s disease data we can accelerate research and the development of new drugs, devices, or other therapies. YOU HAVE THE POWER.