MAY IS HD AWARENESS MONTH | #LETSTALKABOUTHD

Help us turn up the global volume on HD awareness by posting videos, stories & photos to social media using #LetsTalkAboutHD to educate the world about the devastating impact that HD has on families.

NOMINATIONS ARE NOW OPEN!

Nominate the extraordinary individuals, families and organizations in your community and the HDSA Chapter or Affiliate that has accomplished great things during 2024.

MEET OUR NEW PRESIDENT AND CEO AMY GRAY

We are excited to announce that Amy Gray has joined our organization as the new President and Chief Executive Officer.

Watch the HDSA EL-PFDD Meeting!

Registration is now OPEN!

Join us for the 40th Annual HDSA Convention in Indianapolis, Indiana on June 26-28, 2025 This is your unique chance to connect, learn, inspire and get inspired. Our convention is not just an event – it’s a celebration, it’s magic!

GREATER NY SUPPORT GROUP

HDSA support groups are free for individuals, their loved ones, and families impacted by Huntington’s disease.

JOIN POWER HD

By generating the most comprehensive patient-driven Huntington’s disease data we can accelerate research and the development of new drugs, devices, or other therapies. YOU HAVE THE POWER.